Torticollis Update (or Lack Thereof) Pictures

Kellyn has recently turned three-years-old and I am happy to share that she no longer has torticollis.  She hasn't had it for quite some time now. When she first received her torticollis diagnosis, I recall frantically scouring the internet looking for pictures of older children who had been previously treated for torticollis. I wanted to see if they fully recovered or if their stubborn head tilt always persisted. And I wanted to see if any torticollis-induced facial asymmetries had gone away.  If you are a parent starting this torticollis treatment journey, I hope these pictures of my daughter give you hope.  Kellyn keeps her head up straight and her face is symmetrical. You would never know she had torticollis. Going to physical therapy and regularly doing the exercises at home really works.  Believe me, I know torticollis treatment is a long and frustrating journey, but it's so worth it. We are grateful to God for such a great outcome.

Always love a perfectly midline picture.

Early Signs of Torticollis

Kellyn was officially diagnosed with torticollis at seven months.  Unfortunately, she was showing signs of this condition well before that.  If I had known what to look for, I could have had her diagnosed way earlier and her condition would have been much easier to correct.  Torticollis treated before four months has the best prognosis.  That's why its so important for new parents to be mindful of the signs and symptoms of torticollis, so that they can catch it and correct it as fast as possible.

At the time, I never thought anything of her head tilt.

Torticollis Clinic Follow-up Appointment

Today we had Kellyn's three month follow-up appointment at the torticollis clinic at Children's National Medical Center in Washington DC.  It went really well!  I love this place because the physical therapist and nurse practitioner who run the clinic specialize in torticollis treatment.  Since torticollis is not very common, it can be hard to find medical professionals who possess in-depth information about this condition.  I'm able to pick their brain about all my torticollis-related questions (and I have a lot), and they were able to answer all my questions.

Kellyn at the torticollis clinic appointment

Torticollis Pictures: 11 Weeks of PT

So it's about that time again when I post Kellyn's progress pictures from physical therapy for her torticollis.  Comparing to her six week pictures, I would say she has improved tremendously.  Now keep in mind though that her six week pictures were taken on a day that she was having a "bad torticollis day".  Even still, I notice a great improvement overall as compared to when she first started physical therapy.

Her right head tilt is negligible in this picture,
and her right neck depression looks much less noticeable.

Torticollis Clinic Appointment

Today was our appointment at the Torticollis Clinic at Children's National Medical Center in Washington D.C.  We were excited to see medical professionals who specialize in the treatment of torticollis specifically. Of course, Kellyn's head tilt was super minimal today. I almost wished that she was having a "bad torticollis day" on the day of this appointment, so they could see her at her worst.

At the appointment, Kellyn was evaluated by a nurse practitioner and a physical therapist. The women put Kellyn in various positions and they had her demonstrate various motor skills.  After they were done working with Kellyn, they took the time to explain their observations and provide recommendations.

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Feeling Scared

So it seemed like an eternity between the three days of waiting for her pediatrician and physical therapy appointment to get an official diagnosis of torticollis (which at this point, I was almost 100% that she had).  In the meantime, I started researching torticollis on the internet.  I learned about the condition of torticollis and various treatment options.  I scoured torticollis forums on BabyCenter to see what other parents' experiences were.

The one thing that stood out to me was that many babies were diagnosed with this as infants and had started physical therapy early on.  Now my daughter was almost seven months and that almost seemed late to be officially diagnosed and treated in the "torticollis world".  The more I learned about this condition, the more fear and guilt crept into my mommy conscience.  My poor daughter likely started showing signs of this condition around one or two months of age.   That means that I could have spent the last four or five months working with her to correct this problem.