Early Signs of Torticollis

Kellyn was officially diagnosed with torticollis at seven months.  Unfortunately, she was showing signs of this condition well before that.  If I had known what to look for, I could have had her diagnosed way earlier and her condition would have been much easier to correct.  Torticollis treated before four months has the best prognosis.  That's why its so important for new parents to be mindful of the signs and symptoms of torticollis, so that they can catch it and correct it as fast as possible.

At the time, I never thought anything of her head tilt.

Range of Motion Exercise #3

Due to Kellyn's right torticollis, she has limited range of motion turning her head towards her right side.  This exercise will help increase her range of motion looking towards her right.  I like this exercise because I could sometimes get away with Kellyn not even realizing we're doing a torticollis exercise.   When babies are young, they often get pretty captivated by an interesting toy.  And since young babies are often too young to crawl, they can be pretty content just staying in one place and looking at something interesting.  Unfortunately, by the time your baby is mobile, this exercise may become near impossible to do since baby is unlikely to stay in one place for you.  I am including both a video demonstration and a written explanation of this exercise.

Video Tutorial:

Torticollis Regression Due to Illness

So Kellyn has a head tilt regression due to sickness. Poor girl has a runny nose, cough, chest congestion, and wheezing. Her torticollis was really looking better up until recently. However, once the onset of her illness occurred, her head tilt has increased. She's having trouble eating, sleeping, and especially doing her physical therapy exercises. She cries and resists her stretches and strengthening exercises much more than usual.

Still managed to get a smile out of this little sick one.

Torticollis Pictures: 11 Weeks of PT

So it's about that time again when I post Kellyn's progress pictures from physical therapy for her torticollis.  Comparing to her six week pictures, I would say she has improved tremendously.  Now keep in mind though that her six week pictures were taken on a day that she was having a "bad torticollis day".  Even still, I notice a great improvement overall as compared to when she first started physical therapy.

Her right head tilt is negligible in this picture,
and her right neck depression looks much less noticeable.

Last Chiropractic Appointment for Torticollis

So today was Kellyn's third and final chiropractic adjustment.  I don't necessarily think its what the chiropractor would have recommended, but that's what my husband wanted.  He was never super comfortable with the idea of Kellyn going in the first place.  And Kellyn's torticollis is doing pretty well lately, so he figured it was not worth the small risk of something potentially bad happening from the adjustment.  And I'm fine with this decision.  I plan to watch her over the next few weeks to make sure she doesn't experience any big regressions.  I also want to make sure that her improvement continues on in an upward trend.  If we notice Kellyn's torticollis worsening, Ryan and I will discuss whether or not we want to start back up with chiropractic.

My beautiful baby girl bundled up and ready to go to the chiropractor.

Torticollis Physical Therapy Re-evaluation

Kellyn had her eight week re-evaluation with her outpatient physical therapist today. Kellyn must have known she had to perform because she was having "a good torticollis day." Anyways, the physical therapist noticed continued improvement in her muscle strength and flexibility. She was also happy to see that Kellyn's head tilt was negligible while lying on her back.

As you can see, Kellyn's head looks nice and straight while lying down.
Maybe she's showing off for her big brother.

Kinesio Tape for Torticollis: Round 2

So Kellyn's first application of Kinesio Tape did not seem to improve her torticollis.  It was applied to the affected side of her neck (the side she tilts to) and in a method to encourage muscle relaxation.  After taking a little over a week break from the Kinesio Tape, our physical therapist from the early intervention program tried a different technique on Kellyn.  She applied the tape to the unaffected side of her neck to encourage muscle facilitation.  This makes sense since the unaffected side of Kellyn's neck has weaker muscles.

This is the second application of Kinesio Tape on her neck for torticollis.

1st Chiropractic Adjustment for Torticollis

As I mentioned before, Ryan and I have been considering supplementing Kellyn's physical therapy with chiropractic treatment. Before Kellyn got diagnosed with torticollis, I would have never imagined I would be taking my baby to a chiropractor. However, torticollis is a stubborn little condition that improves very gradually. So, after two months straight of daily physical therapy exercises, I was ready to take it up a notch. After hearing such awesome reviews about chiropractic from other "tort parents", I started wondering if perhaps it could work for Kellyn. After praying, researching, watching YouTube videos of pediatric adjustments, and having a consultation with the chiropractor, we finally felt comfortable scheduling the chiropractic appointment for Kellyn.

Kellyn's torticollis presentation one day after her first chiropractic adjustment.

Consultation with Chiropractor

We recently had a consultation with a chiropractor who has experience working with babies and children.  She came highly recommended to us by our daughter's outpatient physical therapist.  My husband and I have been considering supplementing Kellyn's PT with chiropractic since we have heard a lot of positive feedback from other parents of babies with torticollis.

Gloria Rosazza © 123RF.com | glopphy

Range of Motion Stretch for Right Torticollis

In addition to a head tilt, many babies with torticollis also have limited range of motion in the neck to one side.  Kellyn's limited range of motion is to her right side.  Therefore, I stretch her head in the right direction.  In this post, I will provide both a video demonstration AND a written explanation of the exercise (with pictures).

Video Tutorial:

 

Kinesio Tape Removal

Kellyn has had the Kinesio Tape on the affected side of her neck for about four days. As I mentioned, I did not feel this first application technique we tried made a noticeable difference. However, I do not want to give up on it yet, as there are a few other application techniques we could potentially try. Ryan and I decided to remove the Kinesio Tape today since she had her big appointment at the Torticollis Clinic at Children's National Medical Center coming up. We wanted the clinic to see her torticollis in its "natural state" without any potential aiding from the tape.

Stretches Possibly Worsening Torticollis

Kellyn's outpatient physical therapist made an astute perception about Kellyn's torticollis at her physical therapy session last week.  She noticed that Kellyn was resisting frequently during her neck stretches.  The physical therapist said I should not stretch Kellyn if she is resisting because I could indirectly be strengthening the right neck muscle that is overactive.

These were the good ol' days when Kellyn was much more compliant with her torticollis stretches.
Amazing, how much can change within a few weeks time.

 

Snuggin Go & Torticollis Support Kit Review

Some parents told me about the Snuggin Go and the Torticollis Support Kit that they used for their babies with torticollis.  Not knowing much about these products, but desperate for any potential solution to help Kellyn, I bought these items.  I'll go ahead and review these products for you.  In this post, I'm including both a video review and a written product review.

Kellyn using the Snuggin Go and the Torticollis Support Kit in her high chair.

Kinesio Taping for Torticollis

So yesterday, I took Kellyn to a chiropractor who happens to be a Certified Kinesio Taping Practitioner (CKTP).  The chiropractor did a brief evaluation of Kellyn, asked about medical history, and then got started with Kinesio Taping. 

The process was pretty quick and simple.  She basically used three small pieces of Kinesio Tape on her neck area.  She taped her on the side of her neck that she tends to tilt.  The method she used should encourage muscle inhibition.  This makes sense because Kellyn's right side of her neck has tight, overactive muscles.  She explained to me that there are a few different methods to try.  She said we can give this method a few days to evaluate whether or not it worked.  If it doesn't work, we can try the other alternative ways.

If you look closely, you can see the beige colored Kinesio Tape on her neck area.

Six Weeks of PT

So I'm not as excited about these six week pictures as I was about the four week pictures.  As you can see her torticollis looks worse in these pictures than it did just a couple of weeks prior.  Her tilt has likely worsened because she is teething.

Torticollis Clinic Appt. Moved Up & Chiropractic Consultation Scheduled

I have great news! Our torticollis clinic appointment at Children's National Hospital got moved up by three weeks. I believe there was a cancellation, so Kellyn was able to get that appointment. I know that this is a great blessing from God. He certainly knows how anxious I am to get Kellyn seen by these specialists.

John Takai © 123RF.com | cteconsulting

Tilt Regression

Disappointment and frustration are starting to creep up on me again.  I felt like Kellyn's four-week physical therapy evaluation went so well and that she was improving.  I thought it was going to be a continuous improvement from there on out.  But recently, it looks like her torticollis got worse.  She seems to be tilting her head more and doing this more frequently.  And she seems to be more resistant to me stretching her neck in the opposite direction.  It's like her neck is completely stubborn and doesn't want to change.

I don't think Kellyn was too happy about getting her picture taken here.

Treating Torticollis with Alternative Medicine

So its been a little over a month of treating Kellyn's torticollis with physical therapy.  And she has certainly made progress, but she has not improved to the degree I would have expected considering how much time I spend daily working with her.  I truly believe that physical therapy is the best and most effective treatment for torticollis.  However, I am getting at the point where I would consider adding in some alternative medicine approaches to complement her physical therapy treatment plan.  If there is additional things I could be doing to help my daughter recover faster, I want to do them. 

I have heard of a variety of different alternative medical treatment approaches for torticollis.  Chiropractic, acupuncture, accupressure, massage therapy, osteopathy, cranial sacral therapy, and heat treatment have all been listed as various alternative methods of treating torticollis.  I have read numerous posts from parents who have had great success using several of these previously mentioned alternative medical approaches.  Each time I read about their experiences, I get excited about the possibility of my daughter also improving from these alternative treatments.

kudryashka © 123RF.com | kudryashka

Overwhelmed with the Treatment Process

The past couple weeks has been pretty hectic for our family.   Ryan's back has been really bothering him and he is pretty limited to how he can help with the kids or with housework.  Unfortunately, he is now unable to help me get Kellyn's in-home exercises done, so its solely up to me to make sure this gets done.  Also, we have been spending a lot of time researching and shopping around for a new car since our car got totaled from the car accident two weeks ago.  In addition, we have also had so many things like doctor's appointments and various commitments to go to.  

With so much going on, its been tricky to get in the recommended minimum of five sets of physical therapy in-home exercises for Kellyn.  I feel that Kellyn's head tilt has gotten worse recently because I haven't been working with her as frequently at home.  Regardless of what else is going on, I need to remind myself daily to make her in-home exercises a priority.  Most days, I find it unrealistic to get all five sets of her exercises done, while also attending to daily household responsibilities and taking care of my family's needs.  Each day, I feel like I can't win no matter how hard I try.  

Discovered Torticollis Clinic Nearby

Today, Kellyn had an appointment with her physical therapist from the early intervention program.  I am still so thrilled that she comes to our house for the appointment.  That makes it so much easier!  Anyways, her PT shared some extremely helpful information with me.  She told me about a torticollis clinic at Children's National Medical Center in Washington DC.  That's less than one hour away from us.  You better believe I was on the phone almost immediately scheduling an appointment there.