Shoulder Stretch for Elevated Shoulder

Along with her right torticollis, my daughter often elevated her right shoulder.  This caused her torticollis to look a lot worse than it actually was.  Once I started doing this stretch with her regularly, I noticed that she did not raise her shoulder up as much or as frequently.  If your baby doesn't elevate her shoulder, then disregard this stretch. As you'll see below, I included a video tutorial and written instructions to show you how I do this stretch with my daughter.

Video Tutorial: 

Torticollis Physical Therapy Re-evaluation

Kellyn had her eight week re-evaluation with her outpatient physical therapist today. Kellyn must have known she had to perform because she was having "a good torticollis day." Anyways, the physical therapist noticed continued improvement in her muscle strength and flexibility. She was also happy to see that Kellyn's head tilt was negligible while lying on her back.

As you can see, Kellyn's head looks nice and straight while lying down.
Maybe she's showing off for her big brother.

Kinesio Tape for Torticollis: Round 2

So Kellyn's first application of Kinesio Tape did not seem to improve her torticollis.  It was applied to the affected side of her neck (the side she tilts to) and in a method to encourage muscle relaxation.  After taking a little over a week break from the Kinesio Tape, our physical therapist from the early intervention program tried a different technique on Kellyn.  She applied the tape to the unaffected side of her neck to encourage muscle facilitation.  This makes sense since the unaffected side of Kellyn's neck has weaker muscles.

This is the second application of Kinesio Tape on her neck for torticollis.

1st Chiropractic Adjustment for Torticollis

As I mentioned before, Ryan and I have been considering supplementing Kellyn's physical therapy with chiropractic treatment. Before Kellyn got diagnosed with torticollis, I would have never imagined I would be taking my baby to a chiropractor. However, torticollis is a stubborn little condition that improves very gradually. So, after two months straight of daily physical therapy exercises, I was ready to take it up a notch. After hearing such awesome reviews about chiropractic from other "tort parents", I started wondering if perhaps it could work for Kellyn. After praying, researching, watching YouTube videos of pediatric adjustments, and having a consultation with the chiropractor, we finally felt comfortable scheduling the chiropractic appointment for Kellyn.

Kellyn's torticollis presentation one day after her first chiropractic adjustment.

Supported Crawling Position

You may be wondering, 'Why are you concerned about crawling? Shouldn't you be working on torticollis-specific exercises?'. By encouraging Kellyn to learn to crawl, I am indirectly treating her torticollis. Once she starts to crawl, she will hopefully be less likely to tilt her head. Before a baby crawls, she obviously needs to first be comfortable on all four's. This exercise focuses on becoming comfortable on hands and knees, which is a precursor to crawling. Below I have a video tutorial and written step-by-step instructions to show you this simple exercise.

Video Tutorial:

Consultation with Chiropractor

We recently had a consultation with a chiropractor who has experience working with babies and children.  She came highly recommended to us by our daughter's outpatient physical therapist.  My husband and I have been considering supplementing Kellyn's PT with chiropractic since we have heard a lot of positive feedback from other parents of babies with torticollis.

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Range of Motion Stretch for Right Torticollis

In addition to a head tilt, many babies with torticollis also have limited range of motion in the neck to one side.  Kellyn's limited range of motion is to her right side.  Therefore, I stretch her head in the right direction.  In this post, I will provide both a video demonstration AND a written explanation of the exercise (with pictures).

Video Tutorial:

 

Kinesio Tape Removal

Kellyn has had the Kinesio Tape on the affected side of her neck for about four days. As I mentioned, I did not feel this first application technique we tried made a noticeable difference. However, I do not want to give up on it yet, as there are a few other application techniques we could potentially try. Ryan and I decided to remove the Kinesio Tape today since she had her big appointment at the Torticollis Clinic at Children's National Medical Center coming up. We wanted the clinic to see her torticollis in its "natural state" without any potential aiding from the tape.

Range of Motion Exercise #2

Here's another simple range of motion exercise we learned at physical therapy that helps increase Kellyn's range of motion towards her right side.  Its very common to have limited range of motion to one side with torticollis.  Please note that these exercises are for her limited range of motion of head towards the right side.  Both a video tutorial and written step-by-step instructions are included for your convenience.

Video Tutorial:

Stretches Possibly Worsening Torticollis

Kellyn's outpatient physical therapist made an astute perception about Kellyn's torticollis at her physical therapy session last week.  She noticed that Kellyn was resisting frequently during her neck stretches.  The physical therapist said I should not stretch Kellyn if she is resisting because I could indirectly be strengthening the right neck muscle that is overactive.

These were the good ol' days when Kellyn was much more compliant with her torticollis stretches.
Amazing, how much can change within a few weeks time.

 

Torticollis Clinic Appointment

Today was our appointment at the Torticollis Clinic at Children's National Medical Center in Washington D.C.  We were excited to see medical professionals who specialize in the treatment of torticollis specifically. Of course, Kellyn's head tilt was super minimal today. I almost wished that she was having a "bad torticollis day" on the day of this appointment, so they could see her at her worst.

At the appointment, Kellyn was evaluated by a nurse practitioner and a physical therapist. The women put Kellyn in various positions and they had her demonstrate various motor skills.  After they were done working with Kellyn, they took the time to explain their observations and provide recommendations.

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Snuggin Go & Torticollis Support Kit Review

Some parents told me about the Snuggin Go and the Torticollis Support Kit that they used for their babies with torticollis.  Not knowing much about these products, but desperate for any potential solution to help Kellyn, I bought these items.  I'll go ahead and review these products for you.  In this post, I'm including both a video review and a written product review.

Kellyn using the Snuggin Go and the Torticollis Support Kit in her high chair.

Football Hold Strengthening for Right Torticollis

This is a great exercise for Kellyn to work against gravity and strengthen her weak side of her neck muscles.  She also stretches the tight side of her trunk muscles during this exercise.  This is a great two-for-one exercise as it simultaneously works her neck and trunk muscles in different ways.  In this post, I'll include both a YouTube video demonstration AND step-by-step written instructions with a picture.  Please note that this exercise is for babies with right torticollis.

Video Tutorial:

Seven Weeks into Physical Therapy

So here are some pictures seven weeks into physical therapy. Although Kellyn has had some plateaus and regressions since her four week pictures, today happened to be a "good torticollis day." I knew I had to capture it on camera. Basically, Kellyn was holding her head at mid line a lot more frequently than usual. In addition, she was not raising her right shoulder as much as she normally does.

Since she's looking straight ahead, her head tilt is less noticeable here.
Although she still has a slight C-shaped curvature in her trunk,
it's improved dramatically since the beginning of PT.

 

Stability Ball Strengthening for Right Torticollis

Since Kellyn's left neck and trunk muscles are both weak, this is a great two-for-one strengthening exercise for her.  This exercise looks so fun that my son Luke gets jealous when I do this with her.  The only way I can complete this exercise with Kellyn is if I promise that he gets a turn doing the ball exercise after her.  Just what I need...even more physical therapy exercises to do :) Anyways, here's a video tutorial AND step-by-step written instructions (with pictures) below.  This exercise is for babies with right torticollis.

Video Tutorial:

Kinesio Taping for Torticollis

So yesterday, I took Kellyn to a chiropractor who happens to be a Certified Kinesio Taping Practitioner (CKTP).  The chiropractor did a brief evaluation of Kellyn, asked about medical history, and then got started with Kinesio Taping. 

The process was pretty quick and simple.  She basically used three small pieces of Kinesio Tape on her neck area.  She taped her on the side of her neck that she tends to tilt.  The method she used should encourage muscle inhibition.  This makes sense because Kellyn's right side of her neck has tight, overactive muscles.  She explained to me that there are a few different methods to try.  She said we can give this method a few days to evaluate whether or not it worked.  If it doesn't work, we can try the other alternative ways.

If you look closely, you can see the beige colored Kinesio Tape on her neck area.

Six Weeks of PT

So I'm not as excited about these six week pictures as I was about the four week pictures.  As you can see her torticollis looks worse in these pictures than it did just a couple of weeks prior.  Her tilt has likely worsened because she is teething.

Torticollis Clinic Appt. Moved Up & Chiropractic Consultation Scheduled

I have great news! Our torticollis clinic appointment at Children's National Hospital got moved up by three weeks. I believe there was a cancellation, so Kellyn was able to get that appointment. I know that this is a great blessing from God. He certainly knows how anxious I am to get Kellyn seen by these specialists.

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Tilt Regression

Disappointment and frustration are starting to creep up on me again.  I felt like Kellyn's four-week physical therapy evaluation went so well and that she was improving.  I thought it was going to be a continuous improvement from there on out.  But recently, it looks like her torticollis got worse.  She seems to be tilting her head more and doing this more frequently.  And she seems to be more resistant to me stretching her neck in the opposite direction.  It's like her neck is completely stubborn and doesn't want to change.

I don't think Kellyn was too happy about getting her picture taken here.

Treating Torticollis with Alternative Medicine

So its been a little over a month of treating Kellyn's torticollis with physical therapy.  And she has certainly made progress, but she has not improved to the degree I would have expected considering how much time I spend daily working with her.  I truly believe that physical therapy is the best and most effective treatment for torticollis.  However, I am getting at the point where I would consider adding in some alternative medicine approaches to complement her physical therapy treatment plan.  If there is additional things I could be doing to help my daughter recover faster, I want to do them. 

I have heard of a variety of different alternative medical treatment approaches for torticollis.  Chiropractic, acupuncture, accupressure, massage therapy, osteopathy, cranial sacral therapy, and heat treatment have all been listed as various alternative methods of treating torticollis.  I have read numerous posts from parents who have had great success using several of these previously mentioned alternative medical approaches.  Each time I read about their experiences, I get excited about the possibility of my daughter also improving from these alternative treatments.

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